Archives For Jamie Caulk

Brain injured patient’s need treatment quickly

Sanjay Varade, Neuro physician, just reported in Times of Indiamost brain injury patients get paralytic strokes as they are not brought for treatment on time.

Jamie CaulkWhen Jamie was injured in the auto accident the social worker told me on my way in route to Nashville that they got to him “in time.” Meaning his accident was close to Vanderbilt.

The accident happened at 3:30 A.M.Jamie was talking and responding. In fact he was talking until he crashed when they were getting ready to do a “procedure.” From the medical records they were inserting a chest tube.

This was at 9:00 A.M.

Five hours later.

The medical records state that he was agitated and complaining of a headache. They gave him fentanyl to keep him calm. We have talked many times in our family about Jamie being agitated. He was an athlete, he had no feeling in his legs. I would have been agitated too. I have read that in assessing a patient in trauma that it is important to find the reason for their agitation.

Did they ask him? Well, we will never know, right?

According to doctors, severe headache, sudden confusion in the head, blurring of vision in one or both the eyes, tingling sensation in the hands and legs, dizziness and inability to balance are the symptoms of brain haemorrhage or damage.

“If any injury to the brain is treated on time, then physical incapacity and death can be prevented.

Most patients suffer debilitating injuries or die due to late treatment.

According to the World Health Organisation, death due to injury to the brain is the third most common cause of death in the world. Around 36.2% of people under 40 years of age across the world suffer from brain injuries. But if the patient is treated within three to four hours, the chances of paralysis or death reduce,” claimed neurophysicians Sanjay Varade and Suhas Patil during the program.

Do you have any idea how hard it is to read this?

I was 7 hours away on my way down to Nashville when I got the call. I am not saying at that point they weren’t trying to help him. I will say after he went into the coma they gave “no hope” and were ONLY trying to get us to donate his organs.

Dr. Paul Byrne has told me over and over to “make sure the doctors are told to do EVERYTHING to protect and preserve their life.”

As many as 25 percent of all patients are harmed by medical mistakes. What’s even less known to the public is that over the past ten years, error rates have not come down, despite numerous efforts to make medical care safer. Makary, Martin (2012-09-18). Unaccountable: What Hospitals Won’t Tell You and How Transparency Can Revolutionize Health Care (Kindle Locations 61-63). Bloomsbury Publishing. Kindle Edition.

7 Days In October

October 20, 2014 — 2 Comments


Three years ago, you left planet earth and went home. Missy and Jamie Caulk

I know where you are, that is not the problem.

I am happy for you because you are experiencing what we only hope to experience…no more pain or sorrow.

You are happy, and at peace, and I know that.

You are with dad and “Lily Bear”.

Most of the time, I cope with missing you, but on days like this…dealing with the pain of loosing you is excruciating.

People say you left too early.

But did you?

Is our God not Sovereign over all?

Isn’t there a time to be born and a time to die ?

Aren’t the days of our life numbered?

Paul said to die is far better, but that is so hard to understand from a mom’s perspective.

I miss your laugh, your jokes, your texts, hearing of your goals in life, your questions…even your fears.

I have come to realize that there are thousands of moms who have gone through the loss of their children, I read and hear their stories in groups I participate it.

I have doubts and questions still…

I read of people who recovered after they were pronounced “brain dead” and I rejoice that they woke up.

I read of people who had strokes, and I know there were things that could have been done to help you but were not.

We were only told it was a “tragic, devastating injury and there was no hope… a catastrophic injury.”

I know now your brain was swelling and I know they didn’t “try” any of those things, I know they wanted your organs. I am still grateful that we learned enough in our short time in the hospital that brain death was “not” true death and I am thankful we did not let you be cut up while your heart was still beating because life was still in you.

I know we saw tears run from your eyes.

I know your arm moved in a deliberate manner not a spinal reflex.

I know we saw blood flow. “Well, we expected some blood flow” said the doctors yet the doctors didn’t tell us “that” only that it was a confirmatory test. Little did I know they were looking for a confirmation to back up their claim of “brain death” and not to see if you had blood flowing through your brain.

Because…there was blood flow.

I saw it.

The radiologist tech saw it.

Your medical records read, “not confirmatory for brain death.”

“Because the life of every creature is its blood.” (Lev.  17:14, cf. Gen. 4:10, 9:4-6, Deut. 12:33, Acts 15:29, Rev. 16:3) the scriptural focus for life in the body is not the brain but rather the blood. Once the blood fails to reach the cells and members of the body they promptly die.

I asked for an EEG to see brain waves, but we never got that either. Apparently that test was dropped after the Harvard criteria because when they tested it in Minnesota and found brain waves in patients they decided it would “be too confusing for family members” who they had to convince their loved one was dead.

I know that when a person is pronounced “brain dead” and recovers that the doctors in the US blame, “how the tests were done” and not the fact that brain death is a lie to get vital organs from a severely damaged person to pass along to someone who has a better prognosis.

Jamie 3 years todayI am sure you heard us as we prayed for God to wake you up. Where you scared when you heard the doctors discussing this in your presence? Did you hear the organ requestor pressuring us to give them your organs?

Where you afraid?

Did you like many other patients pronounced “brain dead” hear the doctors telling us this?

I tried to keep them out of the room but many didn’t care because they already thought of you as a corpse.

Did you think we had given up on you?

We did not.

I feel guilt constantly because we didn’t move you elsewhere,  in order to give you more time for the swelling in your brain to go down and to see if you could recover…in any capacity.

It is hard to fight “the system and protocols” set up in hospitals.

We were so uninformed at the time.

Now we know.

Jamie, I have been doing my best to educate people on the medical, legal fiction of so called “brain death”. I know it is helping from the emails I have received from people revoking their organ donor status and I am grateful for that…and yet some don’t know or want to believe it  and until they are faced with the traumatic decision and pressured by the Organ Procurement people are clueless what to do.

Life is life, not quality of life, or production in life but LIFE. Only God gives life, only He has the authority to take it away, not doctors who decide to give your life for another, no matter how altruistic and noble it sounds.

Christopher Reeves, lived on a Ventilator, what was wrong with that?  Look what he accomplished?  Research into spinal cord injuries.

Jamie, I would have taken care of you regardless of your condition, I suspect most families robbed of this choice would have too.

It is not about quality of life, it is about who is the author of life and who has the authority to take it away.

Not me.

Not you.

Not the well-meaning doctors.

God is the author and finisher of life, the Alpha and the Omega.

Life on earth is a dot.

But eternity is a ________(long line)________________________________________________________ lasting forever.

My heart aches for you, to touch you, hug you and talk to you.


One day we will all be together again and never say good-bye.

Until that day, I will fight the good fight, I will finish my race and then I will come home.

Until that day…know I love you and miss you and long for that day.

I am thankful I have video’s of you, songs you wrote and sang and I can hear your voice.

I still have a long way to go as I travel this journey called grief…the loss of a child.

I have no choice but to travel it, learn from it and hopefully help others.

And in those moments of greatest darkness, I will love you with an everlasting love. Again and again. (Jer. 31:3)

By faith he made his home in the promised land like a stranger in a foreign country. For he was looking forward to the city with foundations, whose architect and builder is God. Hebrews 11:9-10.

Jamie Caulk quote:

My friends, you can paddle to the island where you can live a free life doing just like I did. Now my advice is just live like Christ lives, just one taste of Him

I’ll bet you’ll like it. He’s better than ANY of them vices I DID, now I wish he could live behind your eyelids – Jamie Caulk

Holding on til’ the day I see it all..fighting for justice.

Jamie Caulk Today is my son Jamie’s birthday. The third one he has spent in heaven.

For those that don’t know, Jamie died from injuries sustained in a car accident in Nashville, TN on October 20th, 2011. He was pronounced “brain dead” on the 16th, then it was overturned, and they did more testing.

A blood flow test that showed he did have blood flow in his brain. After the blood flow test, which was given to him as a confirmatory test the doctors said, “Oh, we expected to see some blood flow”.

Well they sure didn’t tell us that before the test.

We were up against a system, a protocol and doctors who gave us no hope. We were fighting for our son’s life and time. We were denied that.

We were hounded by Organ requestor’s from the time Jamie was in a coma.

Parental Rights

The last couple of months I have been very involved in parental rights issue’s. This is why I support Nailah Wakefield the mother of Jahi McMath to keep her daughter Jahi on life support and Jessica Pelletier’s family to get her out of Boston Children’s Hospital and back to Tufts Medical Center where she was being treated successfully for Mitochondrial disease.

Nailah WinkfieldI know, not in my head but in my heart what these parents are going through.

Yes, the cases are different in Jahi’s, Justina’s and Jamie’s situations but all of them are similar in that the medical care of each child was stripped from the parents with no respect for the parent’s love or concern for their child. (interesting all 3 J’s)


Sometimes tragedy leads to a new perspective for those involved. We see it time and time again, people become involved in a fight for justice because of the pain they have endured. Think of the Adam Walsh Child Protection and Safety Act. This act came out of the kidnapping and sexual molestation of John Walsh’s son, Adam. Good out of evil.

Justina PelletierMy prayer is that the tragedy of holding Justina Pelletier captive for 13 months will become Justina’s Law. This law would give parents the final say in the medical decisions of their child. It would prevent a child being caught in the middle of two different hospitals opinion’s or in what the parents believe is the best course of action.

No one thinks about any of these hard issues’ until it effects your family personally. When it does it changes everything…forever.

Justice for our children

I will keep fighting for parents rights to be granted for the education, health and protection of their children.

No government, regardless of how well-intentioned it might be, can replace the love and nurture of a parent in the life of a child. Parents care, not because their children are “wards” for whom they are responsible. Parents are willing to brave danger and sacrifice, hardship and heartache to ensure the best for their kids.

Jamie Caulk 30th birthday

I miss you Jamie, every second of every day. I am holding on til the day that we finally see it all. I wish you were here today to celebrate your 30th birthday. But, I will honor you by fighting for the children of whom injustice is occurring in the nation.

I will support parents because “I get it.”


My daughter,Christa Caulk blogs here: Letter to Heaven, My Beloved Jamie | Pocket Full of Memories.

In this letter to heaven she writes a letter to heaven for Jamie Caulk, her brother. She has such an amazing writer style, so heartfelt.



Two Years Ago Today,

October 20, 2013 — 1 Comment

Jamie CaulkMy dearest son, Jamie…I am sitting at Sharon’s house today and thinking about you. I can hardly believe it is 2 years since you took your last breath on earth.

Time is funny someday’s it seems like your death happened just yesterday and other times like you have been gone forever.  I miss you like crazy whether it “seems like yesterday” or “feels like forever.”

I went to Vanderbilt this week and sat in the family waiting area. Of course I couldn’t go back in the Trauma area because I don’t have a loved one there to get a pass. But, it was good I went and sat and reflected on those horrible, numbing 7 days. Looking at the families waiting and in agony I knew exactly what they were experiencing.

Bettianne came down on Friday and we had such a great time talking about you and some of your antics. I love hearing stories about things you did, I love listening to the songs you wrote, and sang. To be able to hear your voice and see your face in the multitude of photos and video’s we have is a great comfort.

Jamie, I also know you are fine, at peace and happier than you have ever been. Forgive me for sometimes being selfish and wishing you were still here. In all the books I have read this year, including some of those on near death experiences; no one really wants to come back, and I know you why.

How’s dad? How’s Lilly Bear?  Is she growing? We sometimes talk about if she will be a baby in heaven for Allyssa to raise or we’ll see be all grown up?

  • What are you doing in heaven?
  • Are you leading worship?
  • Building our rooms?
  • Exploring the universe?
  • Do you celebrate your homecoming in heaven, like we do birthday’s down here?

I watched a good video on space this week, it was looking through the Hubble telescope. Hundreds of galaxies and billions of stars. I can’t imagine that; yet you can visit those places!

The one thing positive about you leaving planet earth is that I have learned so much about our eternal home. Like many of us here on earth, we have never been taught about heaven, only a few scriptures read at grave sites and spoken at funerals.

I understand that whether I join you in the intermediate heaven or I am still alive at the Lord’s coming, we will be together again.

 “Usually when we refer to Heaven, we mean the place where Christians go when they die. When we tell our children, “Grandma’s now in Heaven,” we’re referring to the intermediate, or present, Heaven. The term intermediate doesn’t mean it is halfway between Heaven and Hell, in some kind of purgatory or second-rate place. The intermediate Heaven is fully Heaven, fully in God’s presence, but it is intermediate in the sense that it’s temporary, not our final destination. Though it is a wonderful place, and we’ll love it there, it is not the place we are ultimately made for, and it is not the place where we will live forever. God has destined his children to live as resurrected beings on a resurrected Earth.

So, as wonderful as the intermediate Heaven is, we must not lose sight of our true destination, the New Earth, which will also be in God’s presence (because that’s what Heaven is, the central place of God’s dwelling). Randy Alcorn

Sometimes we laugh at all the things we will do together. You should read some of Beka, Abbey and Christa’s text messages. Some would call it morbid but we call it morbid humor. And knowing you and dad, you are cracking up too.

“Truly, truly, I say to you, if anyone keeps My word he will never see death” (John 8:51).

“Jesus said … ‘I am the resurrection and the life. He who believes in me will live, even though he dies; and whoever lives and believes in me will never die. Do you believe this?’” (John 11:25-26).

We ALL miss you like crazy, Jamie. Here is the blog Christa wrote for you today. Give my mom and dad, and grandpa and grandma Caulk and Lilly Bear and daddy a kiss from their mama!

my sweet boy

Stay strong, stay faithful, stay honest, stay loving, stay true to who you are, most importantly stay true to who God is as you’ll be who you are, and you’ll be happy, you’ll be you, you’ll be free. –Jamie Caulk

I’m trying to, James Lindsay.

I love you and I’ll see you soon!