Archives For Success Stories

Parental Rights

George Pickering II’s son was declared “brain-dead” after he suffered a massive stroke in January. In an effort to buy time for his son, he did the wrong thing for the right reasons. He brought a gun to the hospital to give him time with his son.

“They were moving too fast. The hospital, the nurses, the doctors.They were saying he was brain dead, he was a vegetable, said Pickering. “During that three hours, George squeezed my hand three or four times on command.”

George Pickering II’s son was declared “brain-dead” after he suffered a massive stroke in January 2015.

The hospital ordered a “terminal wean” which is a process that slowly ends a person’s life by removing life support.

George Pickering son HAD signed the donor card.

However, because he was not ready to let go of his son and the hospital staff was moving too quickly (they usually do) his son, George Pickering III, is still alive and well because of it.

“There was a law broken, but it was broken for all the right reasons. I’m here now because of it,” said Pickering’s son, George III. “It was love, it was love.”

It wasn’t until several weeks after the incident that Pickering’s son said he learned his family was told he was unlikely to recover from his stroke and coma. Pickering said he still has people come up to him and say, “I thought you were dead.”

“It’s the duty of a parent to protect your children and that’s all he did,” said Pickering’s son. “Everything good that made me a man is because of that man sitting next to me.”

Watch the video of the father and son here.

George Pickering II and his dad

Federal Regulations for Organ Donation

The staff at Tomball Regional Medical Center had notified Donate Life Texas an organ procurement organization that Pickering’s son was a donor.

Remember this is Federal law when there is a potential organ donor whether they have signed the organ donor card or not.

In 1984, the National Organ Transplant Act (NOTA) was signed into law requiring this. OPO staff review the potential donor’s medical condition and history to determine his or her eligibility for donation. The OPO will search the donor registry to determine if the patient is a registered donor.

IF the patient is on the donor list it is an uphill battle for the parents and in most cases especially Trauma 1 hospitals.  The organ donor contract will NOT be violated and the harvesting of the organs will proceed. Occasionally in smaller hospitals they will give the patient a bit more time if the parents are not in favor of the donation.  

Federal law requires timely notification

“Timely notification” means a hospital must contact the OPO by telephone as soon as possible after an individual has died, has been placed on a ventilator due to a severe brain injury, or who has been declared brain dead (ideally within 1 hour). That is, a hospital must notify the OPO while a brain dead or severely brain-injured,  individual is still attached to the ventilator and as soon as possible after the death of any other individual, including a potential non-heart-beating donor. Even if the hospital does not consider an individual who is not on a ventilator to be a potential donor, the hospital MUST call the OPO as soon as possible after the death of that individual has occurred.

(c) Enforcement of OPTN rules—(1) OPTN recommendations. The Board of Directors shall advise the Secretary of the results of any reviews and evaluations conducted under paragraph (b)(1)(iii) or paragraph (b)(3) of this section which, in the opinion of the Board, indicate noncompliance with these rules or OPTN policies, or indicate a risk to the health of patients or to the public safety, and shall provide any recommendations for appropriate action by the Secretary. Appropriate action may include removal of designation as a transplant program under §121.9, termination of a transplant hospital’s participation in Medicare or Medicaid, termination of a transplant hospital’s reimbursement under Medicare and Medicaid, termination of an OPO’s reimbursement under Medicare and Medicaid, if the noncompliance is with a policy designated by the Secretary as covered by section 1138 of the Social Security Act, or such other compliance or enforcement measures contained in policies developed under§121.4  http://cfr.regstoday.com/42cfr121.aspx#42_CFR_121p7

 The hospital that does NOT notify the Organ Procurement Organization, (“usually within 1 hour”) they can lose their reimbursements. So there you go.

I am thankful this family is together to celebrate Christmas. Even though as stated above I would never recommend taking a gun into a hospital… his son is alive and not dead and they are not grieving this Christmas.

I admit this was bittersweet to read as Jamie also had a stroke and we were told “no hope”, “devastating injury”, “brain dead”, “no one recovers”.  IF I ONLY KNEW THEN, WHAT I KNOW NOW.  Hopefully other families will learn from my experience.

 

 

Presumed Consent

Organ donor keeperPresumed Consent is when the State “presumes you WANT to be an Organ Donor.”

Instead of a person walking into a Secretary of State’s office’s and signing a donor card to donate their organs, a person must sign an OPT-OUT form.

Pennsylvania, State Senator Don White, believes human organ donation and transplantation is an issue that deserves more attention.

In light of this he has introduced Senate Bill 1305 and Senate Bill 1306

Senate Bill 1305 would redesign driver’s license and identification card applications to include the question “Do you wish to have organ donor designation printed on your driver’s license?”

“This question, although it is required to be asked, is not printed on all driver’s license/identification forms,” White said. “My bill would also require a phrase to be added to all forms stating that Pennsylvania strongly supports organ and tissue donation because of its life-saving and life-enhancing opportunities.”

Senate Bill 1306 would create a “presumed consent” or “opt-out” system which is in contrast to Pennsylvania’s current “opt-in” process.

Under the legislative change, all applications for a driver’s license or identification card would state: “You are automatically deemed to have consented to being an organ and tissue donor. If you do not want to be considered an organ and tissue donor, you must elect to not be included on the organ donor registry by inserting your initials on the line below.”

Applicants will still have a choice in the matter, White said. But when faced with the question, when required to take a proactive step not to participate, he believes more people will choose to help others by becoming an organ donor.

Informed Consent

People need to be informed on what happens to them when they sign the donor card.

I believe more people would OPT-OUT and never sign an organ donor card, if they were told the truth. If the United States mandated informed consent then you would know what truly happens to you during the harvesting. Brain death is the cutting open of a seriously injured but a live person. They are not given anesthesia so they FEEL the pain. If people understood that if you were truly dead, and laying on the side of the road, their organ’s would NOT be available to transplant. Organ’s need to be vital to be transplanted into a recipient.

 

 chairs at secretary of state Quite frankly I already HATE to go in the Secretary of State in Michigan, the clerks all wear badges,”Would you like to be an organ donor”? And there is a sticker on every chair.

Success Stories

I hope stories like this one about Jimi Fritze, who heard everything the doctors were saying when they wanted to take his organs and he was in a coma.

I am reading a book now by Kate Adamson, Paralyzed but not Powerless.

Kate, at a young age of 38 had a stroke like my son Jamie. Her husband an attorney would not agree to pulling the plug and she recovered. Kate is now an international speaker. Like Kate and Jim many people will WAKE up if given time.

I’m not gonna lie, this story and book were really hard for me to read as I thought about Jamie and what he was hearing when the organ requester at Vanderbilt was at the foot of his bed talking about how many organ’s they could get.

At least I ran the lady in blue out…more on that in my soon to be released book.

Call your Senators and tell them to NOT support these two bills, Senate Bills 1305 and 1306.  If it passes in Pennsylvania, every other state will follow suite.   STOP the legal killing.

More success stories on people waking up from brain death declarations.

Tell me in your comments, if you think Presumed Consent or Informed Consent is the way to go.

Lexi Hansen wakes up

Lexi Hansen Lexi Hansen was hit by a car on the 26th of February while attending college at BYU.

When her brother, Tanner and his girlfriend arrived at Utah Valley Hospital they were greeted by a Social Worker who told them:

“Lexi has suffered a very traumatic brain injury and the extent of her injuries were still uncertain. He also explained that she was not breathing when the ambulance had arrived and had to be resuscitated at the scene.”

The Social Worker told them that Lexi had bleeding in the deep part of her brain and possibly on the upper layers of her brain as well. She also had a C2 fracture of her spinal cord and contusions to her lungs. He stated that everything was considered minor compared to the injuries to her brain.

The doctor explained that Lexi had experienced a shearing injury in the subarachnoid area of her brain, as well as bleeding in either the epidural or subdural area. They would not be able to operate as the injury was too deep in her brain and the damage had already been done. A shearing injury is when the neurons that carry electrical signals in your brain get sheared, or ‘cut-off,’ from each other. These are vital connections in our brain and they cannot be repaired once they are lost. After learning this news we asked if we should have the family members living out-of-state fly in. Travis’s response to this was a non-hesitant, ‘Of course,’ meaning they had not given Lexi a real chance of even making it through the night. Both Travis and the doctors kept asking when the soonest all the family could be here and how long would be needed to extend Lexi’s life.

The family was shown the results of her CT scan. The doctor’s pointed out little white specks on the CT and stated that these were the areas of ‘shearing.’ One us chimed in and asked what percent chance she had of coming out of this. He sighed and said, “One percent, maybe two. Maybe.”

He went on to explain how with brain injuries they can never truly know the severity of the outcome and if Lexi were to make it she may never walk or speak again. He said that many people who suffer brain injuries end up in a care center, never to be independent in functioning for the rest of their lives. (Of course doctors always give people the worst most hopeless news)

When Lexi came into the ER she had come in with a GCS (Glasgow Coma Scale) score of 3. (A GCS score is used to evaluate how conscious and responsive someone is after a traumatic brain injury).  He explained that patients that come in with a GCS score of 3 pretty much have zero chance. He also explained that Lexi had been displaying ‘decorticate’ and ‘deceberate’ posturing, and had even been transitioning back and forth between the two. Both signs of posturing indicate severe brain damage.

A Miracle

The family made their home at the hospital and continued round the clock prayer and fasting for Lexi.

On Sunday with two family members in the room, Lexi opened her eyes.

“We ran to get the rest of the family that was in the waiting room. With us all together, we decided to shut the door and sing hymns to her to invite the spirit as we had done before. We sang hymns like, “Be Still My Soul,” “Abide With Me,” “I Need Thee Every Hour.” While were singing, Lexi had completely opened her eyes and was looking at each of us surrounding her at her bed.While we were singing, she hand signed I love you, moving her arm around so that everyone could see. She then reached for each person’s hands individually so she could squeeze them.”

On Monday they removed the breathing tube. Remember I’ve written many times the ventilator’s are our friends when we are severely injured.

On Friday she was moved from the ICU to a Neurology Rehab Unit of a hospital.

Everyday Lexi is improving.

Marcia Hansen said her daughter’s improvement has far exceeded her doctor’s expectations.

“We know that it was a miracle. We absolutely know that. We know that God’s hand was in it,” she said, adding that her daughter’s doctors were amazed. “They tell us all the time she’s a miracle and ‘you have a higher power working for you because she shouldn’t be here.’ She had zero percent chance of making it when she came in and then 1 percent. They weren’t even going to stitch up her face.” ABC News watch the video.

Lexi on long board What we can learn from Lexi:

1) The doctors who champion “brain death” will say the doctors in Utah made a mistake. Rather than admit someone wakes up from brain death,they always “blame the tests” when someone wakes. “No one wakes up from brain death they say”.

2) We can see that even with a Glasgow Coma scale of 3 and a high C2 spine injury she woke up and is alive.

Jamie was at a 7 GCS when he was brought to Vanderbilt and he had a high C5-6 spinal cord injury.

3) Most Level 1 trauma centers would have already been talking about organ donation. If you child was a donor they would have told you, “As you can see, your daughter is an organ donor”.

4) The Organ donation industry is BIG business and they don’t want to give the patient time to wake up. I’m so glad for the advice I got years ago from Ft Lauderdale lawyer for injuries Wolf & Pravato, they woke me up to these insidious facts.

There is a Facebook page Prayers for Lexi if you want to follow her progress along.

Exerts from Amanda story, Lexi’s brother’s girlfriend who is in nursing school.

You can read the entire story of Lexi’s miracle there.

As I follow along on this success story I know one day I will see a photo of Lexi back on her long board.

Mothers Know Best

December 31, 2013 — Leave a comment

Mothers Know Best

Today I watched this video interview from NBC News on a mother who delivered twins. She was told that the boy, Jamie had died. She began to hold him on her chest. The doctors told her his movement was a reflex, same as in brain death. As baby Jamie began to suck breast milk off her finger they called for the doctor who would not come back in.

Only when they told the doctor that they had accepted his death did he come back in.

The rest is history. Not sure if the video will show up but here is the link, watch it. 

Visit NBCNews.com for breaking news, world news, and news about the economy

From the transcript:

He started making movements just five minutes after he had been handed to us, but the movements were just getting stronger and stronger and after two hours, we thought, he’s getting stronger. he’s not dead. eventually, we said to the doctor — he wouldn’t come back. we kept saying, he’s doing things that dead babies don’t do. you might want to come and see this.

he was amazed he was actually alive.

go and tell him that we’ve come to term with the baby’s death, can he just explain it? that made him come back.

The initial interview was done when the twins were five months old, with parents David and Kate Ogg.

Ann Curry did the interview, who I miss terribly on NBC.

JJamie and Emily 2 years laterA follow up story in March 2012 shows the twins Jamie and Emily growing and doing well.

When I read this story this morning (via a photo on Pinterest that lead me there), I could not help but this of Jahi McMath and her mother Nailah Winkfield, a mother who is fighting to keep her child on life-support to give her time to heal.

Medical miracles do happen and I continue to pray that Jahi will wake up and God will expose the horrific lie of brain death.

Kangaroo Care

The Ogg’s were following a procedure that began in Australia called Kangaroo Care. Skin-to-skin contact with their mothers releases oxytocin, the so-called “cuddle hormone,” which affects multiple areas of newborns’ brains.

Despite the evidence that it works, the medical establishment has been slow to recommend skin-to-skin contact with newborns. Ignorance about the research findings and fear of handling premature babies are two of the main obstacles, say Ludington and Spatz, who works at Children’s Hospital of Philadelphia.

“In the United States, our biggest reason is the physicians don’t know about it because it’s nursing-generated knowledge,” Ludington says. “The physicians want to see the data, but they don’t read any nursing journals.”

Fear plays a role, too, Spatz says. “I still see in most NICUs (neonatal intensive care units) that skin-to-skin is not a standard of care.” NICU babies tend to be tiny and fragile and hooked up to tubes and machines, and both nurses and parents worry about trying to move them, she says. Source

One of my big regrets was that I did not get in bed with my Jamie and hold him.

Nailah, if you can get in that bed with Jahi and hold her.

Mr.Templin

A Montana man brain cancer diagnosis shows how difficult it is to determine whether or not a person has a “terminal illness”. Mark Templin was awarded US $59,000 for expenses and emotional stress after his doctor wrongly told him in 2009 that he had only six months to live. “It is difficult to put a price tag on the anguish of a man wrongly convinced of his impending death,” said the judge. “Mr. Templin lived for 148 days … under the mistaken impression that he was dying of metastatic brain cancer.”

One of Templin’s daughters asked the doctor how her father would die and “he explained one of the tumors would grow ‘like cauliflower’ and Templin would die from a brain bleed.”

After that disturbing diagnosis, Mr Templin sold his truck and quit his job. He put his affairs in order and displayed a large sign in his home saying “Do Not Resuscitate”. His family held a “last birthday” dinner for him and he paid for a funeral service. His son-in-law made a wooden box for his ashes. He entered a hospice for dying patients.

He even considered shooting himself to spare himself and his family the pain of a terminal illness.

However, Mr Templin began to get better, not worse. He booked himself out of the hospice and had more tests. These revealed that he had a stroke and that he did not have a brain tumour.

Award

A judge ordered that Fort Harrison Veterans Affairs Medical Center pay Mr Templin $59,000 for the distress that the diagnosis had caused and to reimburse him for his “last” birthday celebration and his pre-arranged funeral.

Link to original article 

http://www.bioedge.org/index.php/bioethics/bioethics_article/10530#comments